The Light At The End of The Tunnel

The one where there's bad news but even better news about my eyes

Published on October 9th, 2015

Went back to the doctor for the appointment I mentioned in my previous post. That appointment was a fucking waste of time: the doctor that I had my appointment with ( let’s call him “Dr. No” ) didn’t want to see me, because the doctor that I would be working with for the long run (we’ll call him “Doc Oc” – as in “ocular”, not Spider-Man, you nerd) was on vacation and Dr. No didn’t want to start something he wouldn’t finish.

Fast forward to another a very encouraging and informative, educational appointment I had last week: it became very apparent within a very short time, that both I and The Better Half really like Doc Oc. He’s been involved with Keratoconus cases for 20+ years, has a ‘bedside manner’ that is just awesome, explained everything that was normally pretty complex in easy to understand layman’s terms.

Anyway, as the intro eludes to, there was both bad news and good news.

The Bad News: My right eye is also showing (very) early signs of keratoconus as well.
The Good News: It’s really good news.
The shorter version of the longer story: I’ll be going back in for a fitting for scleral contact lenses:
Large-diameter scleral and semi-scleral GP lenses rest on the sclera and vault over the misshapen cornea of a person with keratoconus, for better vision.

scleral lens

As you can see from the pretty image above, the valleys created by KC will be filled in with normal tears, essentially making my cornea round, like a normal, healthy lense. Doc Oc says that this will at the very least slow the development of KC in my right eye to a snail’s pace if not halt it (the lenses and eye fluids pressing on the cornea and such), but the GREATEST impact it will have is this: My left eye, which is currently at 20/400 (legally blind, yo – see my last post, “The Eyes Have It”, where I said to smear Vaseline on your glasses, or on your car windshield to get an idea of what it is like) could possibly jump to 20/100 or possibly even 20/60. When I was a younger, pre-keratoconus dude, I wore glasses and contacts (not at the same time, silly). Without them, my vision was 20/60.

Now, imagine going from vision that’s something like this:

I can’t see em!

To something in this range:

oh, look!

If I can get to anything near to that, I will be absofuckinglutely elated (that’s putting it mildly – no words can describe how excited I am at the prospect) The lenses have been ordered and I await a phone call from the vision clinic letting me know it is time to come in for the fitting.

A bit of a rant on the insurance side of this [mis ]adventure:

Scleral lenses are considered a medical “therapeutic device” – medically necessary and not cosmetic. My insurance knows this, but apparently the front office staff at the vision clinic does not, or at least does not know how to bill for this properly and created a huge pain in my excellent health insurance covered ass. After multiple calls to my medical insurance provider, my vision insurance provider , the vision clinic office staff – and one conference call with the medical insurance and vision center office staff to educate said office staff on how to correctly bill for the lenses, the lenses will be paid for by medical and the eye exams mostly covered by my vision plan.

It was really a much bigger pain in the ass than that, but just thinking about it to simplify it makes my head hurt. But I digress. Stay tuned for the post-fitting blarg post.

This is one of a series of blog posts about my ongoing Keratoconus treatments. You can find all the posts at The Keratoconus Chronicles page.

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